Job Description
Coordinator, Advocacy
Status: Full-Time - 12-month contract – Existing position
Location: Anywhere in Canada, preference for Quebec, Toronto or Calgary. Hybrid or remote depends on location.
We are committed to a human-centered recruitment process and do not use AI tools at any stage of candidate evaluation or selection process.
Cystic Fibrosis Canada is looking for our next Coordinator, Advocacy to help Canadians with cystic fibrosis (CF) live W/O Limits.
Imagine life, health and hope without limits. You can help us lengthen life-spans and improve lives. Ensure CF care and support is available. Increase access to critical medicines. Help everyone in Canada’s CF community live fully, beyond the limits of cystic fibrosis.
Are you ready to help Canadians live without limits? Apply today and change lives tomorrow.
WHO ARE WE?
Cystic Fibrosis Canada has dramatically changed the cystic fibrosis story, advancing research and care that has more than doubled life expectancy. Since being founded by parents in 1960, Cystic Fibrosis Canada has grown into a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors, all working together to change lives through treatments, research, information and support. Despite remarkable progress, the fight is not yet done; there are still Canadians left behind. The organization’s goal is to keep pushing until all people with cystic fibrosis can experience a full, healthy life, without limits.
THE ROLE AND IMPACT:
The Coordinator, Advocacy is responsible for supporting the Director, Government and Community Relations in the execution of CFC’s strategic direction to influence health and financial support systems so that drug access is improved and more equitable across the country and there is a reduced financial burden for people living with CF and their families.
This role works with internal and external stakeholders to improve the lives and livelihoods of Canadians who live with CF, supporting them in their Cystic Fibrosis Canada led advocacy efforts.
RESPONSIBILITIES AND OPPORTUNITIES FOR GROWTH:
Advocacy :
- Assist in the implementation of CFC’s government relations and advocacy programs, including:
- Delivery of volunteer and community engagement initiatives, national and provincial/territorial advocacy updates, webinars and briefings.
- Provide logistics support for lobbying days at Parliament and provincial/territorial legislatures.
- Assist in the deployment of jurisdictional strategies and work plans.
- Support the Director, Government and Community Relations in managing the National Advocacy Network (NAN) and be the primary point of contact for volunteer advocates.
- Work with CFC staff and advocates to ensure that NAN members and community members:
- Have the training and support they need to schedule and attend meetings.
- Have the materials they need for scheduling and attending meetings.
- Are reporting meetings through the online meeting tracker.
- Oversee NAN related social media spaces (e.g. Facebook group) and work with the Director, Government and Community Relations and members of the Marketing and Communications team to develop a forward-looking advocacy-related content calendar to provide social media content.
- In collaboration with the Marketing and Communications team, alert Director, Government and Community Relations on issues arising from social and traditional media monitoring on matters specific to health policy and access to drugs and therapies.
- Work with the Director, Government and Community Relations and Marketing and Communications team to provide content for The Advocacy Brief, CF Canada’s advocacy newsletter.
- Prepare and assist in the preparation of reports, briefings, and presentations on a range of topics pertaining to health policy, pharmaceutical regulatory issues and the reimbursement of medicines and access to healthcare at a pan-Canadian level for internal and external audiences, as well as communicating these materials to the NAN and the broader community.
- Under the direction of the Director, Government and Community Relations, provide support in the development and dissemination of surveys, planning and executing focus groups and other research tools to inform the preparation of patient input submissions.
- As required, support the Director, Government and Community Relations on project teams specific to advocacy, communications, quality improvement in clinical care and advancing research access to medicines, respecting time sensitivity.
- Work with Marketing and Communications and Volunteer Engagement departments to leverage relationships with NAN and community members and include their stories in our blog, newsletter, social media and web content.
- Other duties and responsibilities as assigned.
WHAT YOU BRING:
- Post secondary education in government relations, public policy, public administration, political science or humanities.
- 2-3 years of related work experience in charitable organization, government relations or advocacy.
- Demonstrated experience to effectively communicate advocacy initiatives and outcomes in ways that motivate and engage audiences.
- Experience writing content for web-based applications (i.e. social media) and traditional media (i.e. newsletters)
- Excellent communicator with outstanding written and verbal communication skills
- Knowledge and application of virtual meeting software and the ability to support volunteers in developing written and video content to the CF website and social channels
- Some knowledge of Canadian drug approval and reimbursement processes
- Previous work experience in drafting government relations materials, such as briefing notes, key messages, questions for Question Period, government submissions, etc. considered a strong asset
- English/French bilingualism an asset
WHAT WE OFFER:
- Collaborative, dynamic, and passionate work environment, with colleagues who are driven and motivated for this community.
- A company culture rooted in empathy, accountability, collaboration, and innovation.
- Flexible working schedule
- Remote and hybrid work model offered
Please submit your resume and cover letter directly through LinkedIn
Cystic Fibrosis Canada thanks all applicants in advance. Only those candidates selected for an interview will be contacted.
Deadline to submit your application is February 27, 2026
Cystic Fibrosis Canada is committed to creating a diverse environment and is proud to be an equal opportunity employer. All qualified applicants will receive consideration for employment without regard to culture, ethnicity, race, color, religion, beliefs, gender, gender identify or expression, sexual orientation, nation of origin, genetics, disability, age, or veteran status.
We will be happy to work with applicants requesting accommodation at all stages of the hiring process.
For additional information on our values (Connected, Inclusive, Impactful and Bold), Cystic Fibrosis Canada and the courageous fight being waged against this disease, please visit www.cysticfibrosis.ca